TREAT-NMD Conference

Leiden, Netherlands - December 2019

Posters - 10th December

The following posters were presented on Tuesday 10th December 2019 at the 6th TREAT-NMD International Conference in Leiden.

Global Registry for COL6-related dystrophies

Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy

Burden of rare disorders in Africa and the role of patient registries

Towards clinical trial readiness and reduction of burden for Duchenne and Becker patients in the Netherlands

Utilization of Real-World Observational Data to Study the Safety and Effectiveness of Spinal Muscular Atrophy Treatments

Polish Registry of SMA Patients

GNE Myopathy Patient Registry

The Czech National Registry of Myasthenia Gravis MyReg

Poster List for 10th December 2019

 

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